Seven Snippets Sunday

 

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Tennyson had her first hippotherapy session last week. I'm so happy she was able to go. Her school had her moved to a different date so she wouldn't have to miss it because of her upcoming surgery. I sent the flip video camera with her to school and they took great video. I couldn't help but giggle when I saw how tiny should looked on the horse. Take a look!

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A few weeks ago, I received an e-mail from Pasadena Child Development Associates. They are a non-profit agency based in Pasadena, California and provide a variety of therapy services for children, parents, and professionals. Their list of services is impressive. They requested to use one of my photos of Tennyson to advertise an upcoming workshop on transitioning non-oral to oral feeding. If you are a special needs parent in southern California, they may be a great resource of information for you. You can check out their September online newsletter that Tenn's tummy was featured in here. Their website is www.pasadenachilddevelopment.org.

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Today is Microcephaly Awareness Day! Microcephaly is a condition Tennyson has been diagnosed with because of her head circumference. Her head is the size of a typical 3 month old child. It was easily one of my biggest worries during her first year. Now, I hardly ever think about it. Especially since she has the prettiest, curliest hair that covers her cute little head. (Have I mentioned Tennyson has never had her haircut - ever!? I think the time is near...)

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I've set up a Facebook fan page for the blog. I have a nifty little button on the right side of the blog you can click on and it will take you straight to it! We would love it if you would "like" us. I want it to be easy for you to get the latest and greatest news from the blog, and I will link each post to the Facebook page. Plus, you get to see cute "bonus" pictures throughout the week like this one that I shared on the 3rd anniversary of her NICU homecoming.

 September 27, 2009

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If you are like my husband and don't have Facebook, we still make it easy for you to get the latest blog update without having to check back here. Just type your e-mail address in the box on the right hand side and Tenny can arrive right in your inbox. I just signed my husband up for this so I could make sure it worked, and it does.

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Neither Tenny nor myself have any doctors appointments this week! It's a miracle!

 



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Do you have a blog? If so, I would love it if you shared it with us! So many people take the time to keep up with Tennyson. I would love to do the same and learn more about our readers.

I hope you all have a great week!

Amy

tennsense@gmail.com

My First Blog Post!

I had this image in my head of my perfect blog and what I wanted it to look like and well...it's not quite there, but I'm working on it. I couldn't wait any longer though, I wanted to actually write something!

So welcome to my blog! I've been contemplating blogging for some time. The main focus of the blog, (if you couldn't tell from the name) is Tennyson. My main purpose is to educate people about her, about her diagnoses, about our journey from where we began, where we have been, and where we are now with her. I'll throw in a little about me (my sewing and craft projects and cooking creations), but you probably won't hear much about the man in our lives - he prefers to stay out of cyberspace.

I have been following a few blogs for some time now. Each one has an adorable child, either with cerebral palsy (CP), or some other developmental delay. Early on, those were my only connection to other people with non-typical kids. They validated my emotions and feelings and made me feel like a not so crazy lady. I hope you will bookmark us and check up on us :)

I don't post a whole lot about Tennyson on Facebook, other than celebrating her awesome accomplishments with people who love her. Mainly because people who don't know a lot about her tend to initially feel bad or feel sorry for her; and that is not what I want. She's certainly not lacking in the love department and honestly, she is one of the happiest children I know. No reason to feel bad for anyone in this house. We are blessed, no doubt about it.

So we are going to cover it all and I'll try and keep it real and honest for you. I'll post about my pregnancy, her birthday and NICU stay, the first year, feeding problems, GERD, getting the diagnosis of CP, microcephaly, doctors appointments, therapy sessions, weight checks, developmental delays, having a feeding tube, seizures and epilepsy, chromosome abnormalities and being truly "one of a kind", our amazing family, our amazing friends, how seriously adorable Tennyson is...etc. (you get the idea). I will share her millimeter-stones, and I'm sure you will quickly realize we celebrate just about everything around here - right on down to going to the bathroom.

We'll see how this goes. I don't have a plan to post daily or anything like some of the more seasoned bloggers I follow, but when inspiration strikes, I'll share it with you.

Amy