Seven Snippets - A Little Bit of Everything

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Did you notice the pretty new blog template? I won it! Designer Blogs does a monthly giveaway for one of their Templates each month, and I was the winner for July. I have been dreaming of updating the blogs look since I started last December, and I was so excited to win. I never win! Check them out! They have great designs.

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Since last April, we've been battling to keep Tennyson from losing weight. It seems whenever seizures start up, vomiting does as well, and it's difficult to keep her hydrated and meet her calorie needs. Last April she was around 26 pounds. Two weeks ago at her weight check, she was down to 23 pounds. Seizures have been showing up every few weeks, but this weekend she had them daily. We see the neurologist tomorrow and are hoping to try yet another medicine to get rid of these stupid seizures once and for all. She also has a weight check to see if she has gained anything in the last few weeks. I hope she has!

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We have been discussing a blended diet with her GI doc, feeding therapist, and dietician for some time and we are finally at a point we can begin. Tennyson's diet has always been formula based, and she's never had a diet of real food. My Mom bought a fancy VitaMix blender for us to have for the transition. We should be starting within the next week or two. Her dietician will be creating a few starter recipes formulated specifically to meet her nutritional and calorie needs. It will be more work on my part, and more expensive since we will be buying natural, organic, fresh foods, but I think we will see it pay off in Tennyson's overall health.

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Tennyson's school has arranged for her to do theraputic horse back riding! She will get to go once a month from September to December. I'm so excited for her. Horse therapy, also known as hippotherapy, is great for children with cerebral palsy.

"The idea behind hippotherapy is that the horse's movement provides a sense of rhythm to the rider as well as forces the rider's torso and hips to align and move in the proper physical way. Hippotherapy for patients with cerebral palsy essentially improves rhythm and movement, encourages step spacing (horses step with approximately the same frequency as humans), and promotes normal off-horse movement by training natural motor responses." - The Cerebral Palsy Source

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Tennyson turns 3 years old next Saturday! We are so blessed she is ours. Life is good! 

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We had Tennyson's I.E.P (Individualized Eduacation Program) meeting last week. This meeting outlined which services Tenn will receive, and how often she will get them. I've heard many horror stories about these meetings, but I wasn't really worried about Tennyson's. I knew I wasn't going to be fighting for services. Her school, teacher, and therapists all want the best for her. There were many evaluations of Tenn leading up to the meeting, and I requested copies of them prior to the meeting. I met with the psychologist before the meeting, and I'm glad I did. The only emotional part of the day was hearing the results of her evaluation. Hearing her use the words "profound" and "severe" to describe Tennyson brought tears to my eyes. We obviously know that Tennyson has extreme delays, but hearing someone else point out just how far behind she is, was just plain hard.

 

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I am officially 17 weeks pregnant! I can't believe I'm almost to the half way point of this pregnancy. In the last week or so the all-day-sickness has let up and food actually sounds appealing again. I don't remember being sick for very long with Tennyson, so part of me is thinking this baby is a boy. But then again, I thought Tennyson was a boy, so I probably should be thinking I'm having another girl. We find out the gender on the 13th. Only a few more days!

Here's a cute picture of Tenn...just because she's so adorable!

She makes me smile every single day

 

 

For more Seven Snippets, visit Bringing The Sunshine!

 

 

Amy

 

 

tennsense@gmail.com